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A Face for Picasso Coming of Age With Crouzon Syndrome

$22.08

Publisher: Farrar Straus and Giroux Byr

Author: Ariel Henley

I am ugly. There's a mathematical equation to prove it. At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome - a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it. Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.
ISBN: 9780374314071
Publisher: Farrar, Straus and Giroux
Imprint: Farrar, Straus & Giroux Inc
Published date:
DEWEY: 362.1960430092
DEWEY edition: 23
Language: English
Number of pages: 400
Weight: 484g
Height: 149mm
Width: 217mm
Spine width: 37mm

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